Health Haven wasn’t just an idea—it emerged from a personal journey through the challenges of rare disease diagnosis, treatment, and the search for understanding.
In 2017, Edward Gent, a London-based qualified sports nutritionist and lifelong fitness enthusiast, experienced persistent limb weakness that would change his life forever.
What began as symptoms first misdiagnosed as a snapped tendon, then feared to be ALS, finally revealed itself as Multifocal Motor Neuropathy (MMN)—a rare immune-mediated condition.
Facing frequent IVIg infusions and fluctuating strength, Edward discovered a troubling gap: people with rare conditions struggled to find tailored resources and community support that truly understood their unique challenges.
"When you're facing a rare condition, you realize how alone you can feel. I wanted to ensure no one else had to navigate this journey without proper support and understanding."
Motivated to advocate for himself and others facing similar trials, Edward became a sports nutritionist and began delivering targeted dietary and wellness plans informed by firsthand experience.
Initially Conceived
A digital platform to connect fitness professionals and clients with specialized health needs.
Evolved to Serve
Those with rare diseases, offering medically verified content and community connections.
Growing Impact
Access to vetted coaches, therapists, and health experts who understand rare conditions.
Download the Health Haven app and connect with thousands of people who understand your journey.